De Volkskrant reports that the medical records of tens of thousands of people with post-COVID and Q fever are at risk of being destroyed. These data were collected by C-support and Q-support. Now that these organisations are required to cease their activities, the patients’ records will also be deleted. Patients have until Friday to download their own records.
The destruction of the data held by C-support and Q-support means that valuable information will soon be lost. This is a matter of great concern to us at the NMCB | Netherlands ME/CFS Cohort and Biobank Consortium. Particularly for these illnesses, which we still have so much to learn about, it is essential that this data is preserved for research.
👉 Read the two articles here:
https://lnkd.in/eNt73BsU
https://lnkd.in/eWytC_E9