The Dutch ME/CFS Cohort and Biobank consortium

NMCB is a collaboration of Dutch research institutes, medical centres and patient organisations dedicated to biomedical research of
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

This project is made possible by:

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What is ME/CFS?

ME/CFS

ME/CFS is a serious disease that disrupts patients’ lives and causes a lot of suffering. ME/CFS patients experience continuous and intense exhaustion. In addition, symptoms worsen even after minimal mental, physical, emotional or social exertion – something known as “post-exertional malaise” (PEM).

ME/CFS symptoms:

Post-exertional malaise (PEM)
Muscle pain, headache
Disturbed sleep
Sensitivity to stimuli (light, sounds, touch or smells)
Overall state of discomfort and illness
Cognitive problems, such as problems with information processing, concentration and memory

WHAT WILL NMCB DO?

Building an international ME/CFS hub

Biomedical research

Despite the impact of ME/CFS, much is still unknown about its causes and possible treatments. NMCB recognises the need for biomedical research on ME/CFS. By establishing a national patient cohort and biobank, we are building an international infrastructure for research to improve the knowledge, diagnosis and treatment of ME/CFS.

NMCB research

In an eight-year collaboration between scientific and clinical experts, as well as patients, the NMCB will enable in-depth research divided first of all into six subprojects. In collaboration with an international research network, the NMCB will establish an international ME/CFS hub to facilitate additional research on ME/CFS.

Collaborations

Patient representatives

Patients and their experiences are an essential part of the NMCB. In collaboration with three ME/CFS patient organisations, we want to ensure that patients’ experiences remain central to our studies.