The perspective of a caregiver and my connection with the NMCB
I am Markus, father of three daughters and caregiver of two family members, both bedridden.
ME/CFS has a huge impact on patient’s lives. Read some experiences in the patient stories below.
The perspective of a caregiver and my connection with the NMCB
I am Markus, father of three daughters and caregiver of two family members, both bedridden.
"In this process, co-creation between patient and scientist was the 'modus operandi', which honors the approach of the Research Program."
My name is Evelien van den Brink. I fell ill when I was 14 and I am now 40.I got pneumonia and did not recover well. A few months later, I got the flu and after that I was never healthy again.
"What I admire about our ME community is the resilience of the patients and the drive to share knowledge. Despite everything, there is a great willingness to work together with a focus on the future."
My name is Hannah.
I have been living with ME/CFS for more than half my life. On behalf of people with ME/CFS, I am now helping with the NMCB. This is a collaboration of researchers and others involved. We want to better understand ME/CFS and improve the lives of people who have it.
"Hopefully, people with ME/CFS will indeed be properly understood and helped in the future."
My name is Naomi and I have been ill for 5.5 years. It all started during my final internship in Ostend in 2018, when I was 19 years old. After an infection, I developed flu-like/cold symptoms, from which I never fully recovered. The exhaustion, loss of strength, dizziness, etc., persisted.
"There are even patients who receive less help and understanding than I do and who are seriously ill and not seen. That's why I want to contribute and hope to make a difference."