What I especially want to communicate with my story is that ME/CFS patients are often not examined thoroughly enough. Which results in contributing everything to ME/CVS and missing underlying conditions.
ME/CFS has a huge impact on patient’s lives. Read some experiences in the patient stories below.
What I especially want to communicate with my story is that ME/CFS patients are often not examined thoroughly enough. Which results in contributing everything to ME/CVS and missing underlying conditions.
Who says I’m the only patient whose ME/CFS was caused by a rare condition?
The perspective of a caregiver and my connection with the NMCB
I am Markus, father of three daughters and caregiver of two family members, both bedridden.
In this process, co-creation between patient and scientist was the 'modus operandi', which honors the approach of the Research Program.
My name is Evelien van den Brink. I fell ill when I was 14 and I am now 40.
I fell ill when I was 14 and I am now 40. I got pneumonia and did not recover well. A few months later, I got the flu and after that I was never healthy again.
What I admire about our ME community is the resilience of the patients and the drive to share knowledge. Despite everything, there is a great willingness to work together with a focus on the future.