BLOG: What is Scientific Research and Why is it So Important in ME/CFS?
There are various biomedical studies underway on ME/CFS. For patients and their loved ones, this is hopeful, but the world of research can sometimes be difficult to follow. What exactly is scientific research? And why do we need it so badly? At its core, scientific research is a way to gradually build reliable knowledge. Researchers […]
Not All Heart Abnormalities in Post-COVID Are Due to Reduced Fitness
Many people with post-COVID experience persistent fatigue. For some of them, heart measurements show abnormalities. For a long time, it was believed that these changes were mainly the result of fitness loss due to lack of movement. This is referred to as cardiac deconditioning. A new publication in the British Journal of Sports Medicine explains […]
Home Visits Now Available in More Locations
Good news for people who want to participate in the NMCB research but find a hospital visit too strenuous. In addition to Utrecht, home visits are now also available in the Amsterdam and Nijmegen regions. A research nurse can visit at home to perform measurements and blood collection. What happens during the visit is always […]
Prize for research on orthostatic intolerance in ME and post-COVID
With his research on orthostatic intolerance in people with ME/CFS and post-COVID, VU student Stijn Wolters recently won a prize for the best scientific poster. He received this award during the annual symposium of Amsterdam Movement Sciences. In his category, twenty posters were judged. According to the jury, his poster stood out due to the […]
Video about research into ME/CFS and post-COVID in children
For most children, playing, going to school, or meeting up with friends is completely normal. For children with ME/CFS or post-COVID, this is often not the case. At the Wilhelmina Children’s Hospital (WKZ), research is therefore being conducted into these conditions in children and adolescents. Children with ME/CFS or post-COVID often experience severe fatigue, pain, […]
Unbroken
M.E. portrayed by artists with M.E. From 29 April to 5 May, a unique exhibition will be held at the Treehouse on the NDSM Wharf in Amsterdam, featuring work by artists with M.E. and children with M.E., under the title “Unbroken.”The many tens of thousands of people living with M.E. (Myalgic Encephalomyelitis) in the Netherlands […]
NMCB participants will soon receive a stool sample kit
Soon, all new participants in the Dutch ME/CFS Cohort and Biobank (NMCB) will receive a sample kit by post. Collecting stool samples will become a standard part of the NMCB study. Scientists will use these samples to investigate the role of viruses and the gut microbiome in ME/CFS. The gut microbiome is the collective term […]
NMCB research now also available in Nijmegen, including home visits
Until now, participants could only take part in the study at Amsterdam UMC. Participation is now also possible at Radboud UMC in Nijmegen. Home visits are also available for housebound and severely ill participants who are unable to travel to the hospital. In these cases, research nurses visit participants at home, where they carry out […]
Publication from NMCB research: When blood vessels fail to recover after a viral infection
NMCB researchers contribute to an international review on blood vessels in ME/CFS and post-COVID A review on the role of blood vessels in ME/CFS and post-COVID has been published in the scientific journal Cell Death & Disease. NMCB researchers Rob Wüst and Anouk Slaghekke contributed to this publication. In the review, researchers describe how a […]
Young people – Help with important research on ME/CFS and post-COVID
For the NMCB (Netherlands ME/CFS Cohort and Biobank Consortium), we are looking for children with ME/CFS and healthy children aged 8 to 18 years. This biomedical study, funded by ZonMw, aims to improve our understanding of ME/CFS and post-COVID in children. Who can participate? Why participate? There is still limited knowledge about how ME/CFS and […]